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Bike Ride raises awareness about rare skin disease

A man who’s biking across the country to raise awareness for a deadly disease stopped in Quincy Friday night. 

Robb Freed calls it "The Big  Ride." He started in Jacksonville Beach, Florida, made his way to Seattle and is eventually headed to Coney Island, New York.
Freed is raising money and awareness for a disease called Epidermolysis Bullosa, also known as EB. It’s a rare skin disease that took the life of Freed’s son at just 13 months old. Freed says it’s the worst disease you’ve never heard of.

"The awareness to have it out there I think is going to help eventually find the cure. It takes money it takes time, it takes all these things to find the cure and better treatment but I think we have to start with some of the awareness of letting the world now."

Freed has been riding for more than 160 days and will head next to Cincinnati, Ohio.
you can find out more information about Freed’s ride and fundraising effort at


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